Tag Archives: living with Parkinson's Disease

Parkinson’s, Tequila, and Tolkien #amwriting

Most writers are hobbyists. This is because if one intends to be a full-time writer, one must have an income, and frankly, very few authors support themselves by writing alone.

My Writing LifeTechnically, I am a full-time writer. For about ten years after I retired from corporate America, I had regular office hours for writing. Nothing lasts forever, and now I am drawing on the habits I developed during my years as a hobbyist. I write when I can and devote the rest of my time to caring for my family.

It is easy to fit short bursts of writing into my daily schedule. When I was younger, I wrote at work while on break or at lunch. Sometimes, I was able to dedicate a block of time for writing by rising two hours before I had to depart for work. But usually, I wrote after the dishes were done and the house was clean. If I skipped TV, I could get a whole scene on paper.

A happy life is all about balance. I arrange my writing time around whatever the calendar says is scheduled.

IBM_Selectric (1)So, let’s talk a little more about what we write. Most of us don’t intentionally write to preach to people, but the philosophies we hold dear do come out.

Some people see good and evil as black and white. A person is either good or evil, with no middle ground. Cartoons are wonderful because often they’re a simple story of good and evil. Many times, a cartoon is precisely what I want at that moment.

Many of my favorite authors are vividly aware of the gray area between good and evil. They write engaging novels exploring that concept. Sometimes, I’m looking for that sort of story.

Whether we are aware of it or not, our life experiences and our societal and religious beliefs emerge in what we write. This is why authoritarian governments ban books they don’t (or can’t) read. Exposure to a broader world of ideas and values undermines ignorance. An educated population is difficult to manipulate.

Subconscious fears of climate change, anxiety about a society on the edge of collapse—these subliminal uncertainties fuel post-apocalyptic storytelling. Our hopes for a better society come out in our plot arcs and world-building.

In many ways, writing is undertaking a pilgrimage.

cropped-1380px-canterbury-west-winter-highsmith.jpg

Detail of mural by Ezra Winter illustrating the characters in the Canterbury Tales by Geoffrey Chaucer

People go on pilgrimages for many reasons. Often, they’re in search of moral or spiritual wisdom. Sometimes, pilgrims go to a location that has significance to their beliefs and faith.

Other times, the pilgrimage is an inner, symbolic journey. I find creating a world and writing a society involves a good, in-depth examination of my principles and values.

People are often changed by a journey to a different place and seeing how other people live. We evolve as human beings through our experiences and interactions.

Writing has the same effect on us as if we had journeyed to a far land and experienced a new culture. In the process of writing, we explore events that affect our emotions and challenge our values. We brainstorm our principles and philosophies.

My Coffee Cup © cjjasp 2013We each grow and develop in a way that is unique to us. Sometimes, we are hardened by our life experiences, and our protagonists have that jaded sensibility. Other times, we accept our own human frailties, and our protagonists are more forgiving.

J.R.R. Tolkien wrote fantasy showing the evil the world was capable of in the first part of the 20th century. He also laid bare his hope for a better future and understood how the masses are swayed by charismatic leaders. Tolkien recognized the tenuous difference between that which is right and moral and what is expedient and easily glossed over.

He understood how societies lie to themselves and justify their actions.

In The Hobbit, J.R.R. Tolkien put a face on the Engine of War. In our real world, the Engine of War is an evil that seems unstoppable, an endlessly hungry entity made up of faceless soldiers acting on commands given by faceless leaders, committing unspeakable violence against faceless people.

Wars can be fought on another front—my spouse has Parkinson’s. I see that battle not from the side of the military forces but from the side of the people upon whose lands those battles are fought.

Ice_cubes_openphoto_croppedThe battles we fight on the home front don’t have to be serious all the time. Sometimes, they can be hilarious. When your spouse has Parkinson’s, life is like a blended margarita, as seen from the ice cube’s perspective.

One minute, you’re sitting in the ice cube bin with the other cubes, everyone acting cool.

The next thing you know, someone drops you and a few of your friends into the blender and then throws Lime Juice in.

Lime looks a little startled, but nothing gets her down for long. She’s a master at keeping things zippy with her tart sense of humor. You’re relaxing with the other cubes, chatting with Lime.

Then, Tequila drops in, and it’s all good—your fellow cubes love Tequila and Lime. Here comes Triple Sec, and now it’s a party. You’re all just sitting around, chilling and flirting with Lime, Tequila, and Triple Sec.

caloricclassic  red blenderSuddenly, some joker turns the blender on, and everything goes to hell. They turn it off, and you think, “Okay, disaster averted. It’s gonna be okay.”

But no.

It’s on – off – on – off – on – off – so chaotic you can’t keep up with it. At the end of it all, you and your fellow ice cubes, along with Tequila, Triple Sec, and Lime, are like Fukushima after the tidal wave – a slurry of confusion and terror.

Then, to top it off, the joker who ruined the party pours you into a glass and adds salt to your wounds.

You know you’re gonna die, but you’re still cool. In fact, you’re Stevie Wonder cool.

Blended_MargaritaLife is like a blended margarita. It’s all in how you look at it, so stay cool and enjoy the party for as long as it lasts.

And let those life experiences fuel your writing.


Credits and Attributions:

IMAGE: Ice Cubes, Wikimedia Commons contributors, “File:Ice cubes openphoto.jpg,” Wikimedia Commons, https://commons.wikimedia.org/w/index.php?title=File:Ice_cubes_openphoto.jpg&oldid=796010605 (accessed February 4, 2024).

IMAGE: Detail of mural by Ezra Winter illustrating the characters in the Canterbury Tales by Geoffrey Chaucer. Library of Congress John Adams Building, Washington, D.C.Wikimedia Commons contributors, “File:North Reading Room, west wall. Detail of mural by Ezra Winter illustrating the characters in the Canterbury Tales by Geoffrey Chaucer. Library of Congress John Adams Building, Washington, D.C. LCCN2007687083.tif,” Wikimedia Commons, https://commons.wikimedia.org/w/index.php?title=File:North_Reading_Room,_west_wall._Detail_of_mural_by_Ezra_Winter_illustrating_the_characters_in_the_Canterbury_Tales_by_Geoffrey_Chaucer._Library_of_Congress_John_Adams_Building,_Washington,_D.C._LCCN2007687083.tif&oldid=727674759 (accessed February 4, 2024).

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Life, Parkinson’s, and writing to an outline #amwriting

Writers live one life on paper and another in the real world. No matter what genre we write in, the real world can be more challenging to navigate, more confusing, and more important to enjoy to its fullest.

MyWritingLife2021We have gotten a grip on my husband’s battle with Parkinson’s Disease. We can mitigate his symptoms with the right diet, exercises, and medications, simple things that help no matter what your underlying health issues are.

While rough terrain and loose soil or sand are a problem, he can still go for long walks and enjoy the natural world. We choose our paths carefully and have found that bike trails and running paths are excellent places to walk.

Our small town has a large park built around an old flooded quarry. The trail through there follows an old railroad grade and is a beautiful place to walk year-round.

As I have mentioned, we are preparing to sell our house and move twenty miles north, back to the city where we were raised. We need to be where there is good public transportation and easy access to our health care providers.

We’ve been in this house since 2005, and if I had one wish, it would be to pick our house up and move it to where we need to be. We have made many memories in this house, and it’s what our grandchildren think of as home.

When we bought this house, it was the height of the housing bubble, and for many years we owed more on the house than we could have sold it for. Now is the right time to put the house on the market. It’s a good time to embark on our new adventure.

We will indulge ourselves with plays and concerts, going to parties at night – things we haven’t been able to do since the doctor banned my hubby from driving. I don’t drive at night because of my night blindness, so he always drove after dark.

In the town where we plan to move, the streets are well-lit by streetlamps, and I have no trouble seeing even in the rain. But out here in the country, the roads are pitch black. Right now, we need to be home before sunset.

This week we are making another foray, possibly getting on the list for the apartment we want. We have our eye on three places, each with different amenities. No matter where we go, we need two bedrooms, as one will be the office.

Parkinson’s Disease has made us more aware of what truly matters in life. I’m turning seventy this June, and I feel no different than when I was thirty. I don’t have as much crazy energy, but I’m still that woman. Just a little wiser.

And slower.

And Greg is still that man. His diagnosis has motivated us to make the most of life, and in our new town, we will have plenty of opportunities to do just that.

yoga04182023LIRFLSVT BIG therapy has taught my otherwise quiet and reserved husband to live large and loud. Actually, anyone can benefit from these exercises.

I have found that the more I accomplish on the packing up and sorting front, the better I write. I’m not the world’s best housekeeper. Dust is dealt with when it becomes a problem, but I cannot handle clutter. I need my space to be visually organized, or I can’t focus.

Unfortunately, clutter is the name of the game at this point. We take a carload of objects to donate and then pack a few things we don’t want to part with. Then we stack the boxes in this corner (if they are keepers) or that one (if they are going to charity).

Things that can go to the unheated storage unit will be taken there, but pictures and certain documents must be stored in a dry heated space.

On the good side, our daughter had her piano moved to her home sixty miles north of here, which gave us a place to stack those boxes that can’t go to the storage unit.

Right now, in my writing life, my work-in-progress is at a place where I am trying to push the story forward. Below is where I am at in my outline – the crossed-out scenes have been written, and I am working on the next one, which will be crossed out when I move on to the chapter that follows this section.

Second plot point in Lenn’s Story

  1. Lenn goes to the port first, then walks back up the High Street, past the Temple complex, and to the East gate.

  2. Nutter questions him about the Tax Man. Lenn explains that the man isn’t from the Temple but is a thief.

  3. Lenn, Mikel, and Callie go to the Portside Inn, get more info on the Tax Man. The local ale hound, Rahlie, is a little too interested in Callie.

  4. Lenn steps in before she can zap the idiot with her magic. Initially upset with Lenn, Callie relaxes when he tells her he doesn’t want anyone to know she is more than just a healer. He wants her other abilities to be a secret weapon.

  5. New chapter: The following day Salyan arrives with the recruits. His drama ensues.

  6. Lenn convinces Salyan to return to glassmaking despite his father’s wishes, and it ends well. Irina asks Salyan to walk to the Odensday market with her.

boxLIRF04182023Mornings usually find us wondering what we can get done that day, and evenings are often spent contemplating what could have gone better. I write whenever I can, and often end up rewriting something that seemed like a good idea at first, but which no longer works.

But no matter how the day goes, we laugh at the silliest things. And that is what life should be – full of laughter and plenty of reasons to wake up the next day.

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